| Fifty-Three Organizations, Healthcare Professionals, Patients Join Forces to Urge Lawmakers to Improve Care for the | | Posted Tuesday, September 19, 2006 3:11:36 AM by Blog57 Team | | The Life in Motion Movement Disorder Patient Summit convened congressional representatives, physicians, patients and caregivers today on Capitol Hill to discuss ways of improving care for the more than 40 million Americans affected by movement disorders -- chronic and debilitating neurological conditions, affecting more than twice the number of people with diabetes and more than four times the number of those surviving cancer. During today's event, lawmakers were urged to educate their constituents about movement disorders in order to reduce the amount of time it takes for a patient to obtain an accurate diagnosis and treatment, which may take upwards of five years and visits to 15 doctors. Prior to the inaugural assembly, more than 4,000 Americans from every state reached out to their Congressional representatives and urged them to attend the Summit.... | |
| |
| | | Friedreich's Ataxia Research Alliance Announces Support From NIH ... | | Posted Wednesday, August 09, 2006 1:30:59 AM by Blog57 Team | | WASHINGTON, July 13 /PRNewswire/ -- The Friedreich's Ataxia Research Alliance announced today that the National Institutes of Health has accepted the University of Pennsylvania and Edison Pharmaceuticals into the Rapid Access to Interventional Development (RAID) Pilot Program for the development of Edison Pharmaceuticals EPI-A0001 for Friedreich's ataxia. Under the NIH Roadmap initiative, the RAID Pilot Program has assembled an inter-institute team consisting of the National Institute of Neurological Disorders and Stroke, the National Institute of Child Health and Human Development and the Developmental Therapeutics Program of the National Cancer Institute that will combine resources and expertise to translate EPI-A0001 into the clinic. This NIH RAID project will provide drug development guidance and resources to enable an Investigative New Drug application to be filed with the Food and Drug Administration -- the first step in its regulatory submission process.... | |
| |
| | | Indians in Bahrain help to send ailing Keralite home | | Posted Tuesday, July 11, 2006 2:58:09 AM by Blog57 Team | | Dubai: An Indian expatriate organisation in Bahrain is on a fund-raising campaign to send back home for treatment a Malayali tailor who is in a Manama hospital in an unconscious state.According to reports, 58-year-old Pushpangathan Shankaran, who has been working as a tailor in Muharraq in northern Bahrain for the last 28 years, was admitted to hospital last month in an unconscious state. He has a history of vertigo and ataxia, or the loss of the ability to co-ordinate muscular movement.A report in the Gulf Daily News newspaper said that an Indian community organisation, Surya Charitable and Cultural Association (SCCA), is carrying out a fund-raising campaign to send Shankaran home. He had been admitted to the Salamaniya Medical Complex in Manama. Manoj Maiyanoor, SCCA secretary, was quoted by the daily as saying that Shankaran's family was living below the poverty line, and his own monthly income was hardly 60 Bahraini dinars (BD) ($159)."He is going to need no less than BD 3,000 to travel to his country and for initial treatment expenses," Maiyanoor told the newspaper.... | |
| |
| |
|
|
